health

Four Years On – I’m Doing Things Differently

I’ve been living with stage four cancer for four years now. Although I wasn’t official diagnosed until 18th January 2016, here is no disputing the fact that this time 4 years ago my body was filled with cancer.

When I was first diagnosed I didn’t fully appreciate how hard treatment was going to be. I also didn’t give myself time to weigh up my options.

Three weeks after my diagnosis I started two types of chemotherapy (taxol and carbo) alongside a maintenance drug (Avastin).

It was brutal beyond words.

Four months later I underwent surgery to remove multiple organs before receiving more chemo. I didn’t question it. I thought it was just what you did when you had cancer. Cut, burn or poison. Those were the only options being offered to me.

But a lot has changed since then.

I’ve dedicated my life to finding other ways to support my body and my healing – not just physically, but emotionally and spiritually too.

I’ve managed to stay off chemo for 3.5 years which is no easy task with stage four cancer. It’s involved some gambles, some risks, some crowd funding, some private treatment and an incredible immunotherapy trial. It’s also involved a lot of self development and growth – training as a yoga teacher and a shaman are just some of the steps I’ve taken, for instance.

Now I face the unavoidable truth that my cancer is progressing again and I have to make new choices, I have to put all this knowledge to use and, instead of panicking, make informed decisions that are guided by my, every reliable, intuition and inner knowing.

I’m no longer the person I was 4 years ago. I know the system. I know my body. I know my cancer. I’m doing things differently this time and I want to share it with you all.

In my next few posts I’ll be sharing some of the ways I’m approaching things differently now and what I wish I’d known back then when my younger self was first diagnosed.

I hope my words help you or someone you love.

With Love and gratitude today and always, Fi xx

► I’ve set up a GoFundMe page to (hopefully) enable me access private treatment. If you are able to please donate and/or share it. Thank you. ◄

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6 thoughts on “Four Years On – I’m Doing Things Differently”

  1. Hi Fi. I am really sorry to hear about your progression and wish you good luck and continued success in your new approach. I have contacted you previously to ask if you have considered mistletoe therapy, but at the time you weren’t considering it as you had been told that it was not compatible with one of your other complementary therapies. So here I am, suggesting it again. I have been having high dose mistletoe therapy (Ivs, intra-tumourly and subcutaneously) for 3 years and give it full credit for turning my situation around. Camphill Well-being Trust in Aberdeen is the “best” (most experienced, pushing the boundaries the most), place to get it in the UK and is relatively close to you. It has been so beneficial to me that I want to tell the world. Sorry if you’re not interested and I am harping on, I won’t mention it again. Good luck.

  2. Thinking of you this Xmas Fi. You are so brave and I’m so sorry you can’t just not have fucking cancer. xx

  3. Hi Fi – I was diagnosed with ovarian cancer 3C in Jan 2012. Have had lots of chemo, two surgeries but still here and surprisingly well – walk 4-5 miles every day. I will never be clear of it but intend to be here as long as possible and as long as I have a good quality of life. I have built up a whole combination of things – similar to the radical remission points- that I think have helped me. I have also been on the Care Oncology Clinic repurposed drugs for 18 months and my oncologist has been pleased at how effective my last chemo has been. The drugs are are not stand alone but hope to make chemo more effective – I cannot say it has worked but I am glad chemo is still working for me. Wishing you well! Lynn xx

  4. Hi Fi. I did not mean to post anonymously. I am the person who posted to recommend mistletoe therapy. I have/ had hormone positive breast cancer. Not ovarian. I was diagnosed in Sept 2016, de novo secondary. . . I was told “palliative chemo only, no surgery”, as I had 6 liver mets. . . .small, but still 6!!! I had 6 months of chemo, then started hormone therapy. I started high dose mistletoe therapy in the middle of chemo (high dose IVs, intratumour injections and subcutaneous injections at home myself). After a year of stability, and much pushing from me ( I read papers and wrote a letter pushing for it), they agreed to give me surgery. I had a liver resection summer 2018 (the first breast cancer patient in Aberdeen to be given surgery for liver mets), and a mastectomy and full node clearance in October 2018. I had radiotherapy early 2019. I have now been “free of visible cancer” for one year. Not cured, not in remission, but doing much better than anyone expected.
    Of course my hospital team would take full credit for it, and say it’s because of the conventional medicine I have had.
    And aswell as mistletoe therapy i have read lots of books and done many of the usual things: juicing, lots if turmeric, infra red saunas, dairy free, low-carb diet, lots of supplements- I went to a nutritional therapist who recommended a lot if supplements ( can also recommend her – she is in Aberdeen- helped get her husband into remission for oesophageal cancer).
    Who knows what has ” worked”???? But I feel that going to Camphill was a turning point in my diagnosis and the mistletoe helped turn my situation around. They were the only place to offer me any hope, at a very bleak time. They have never said that they have cured me, they would never say that they can “cure” me, even now. They just say that it can help patients with the side effects of chemo, and that for some people it does seem to have a strong effect on their tumours. I was 35, with 3 children under 5 and being told I had “incurable cancer” . . . I had nothing to lose. And i am so glad that I found it.

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