So today was officially one week since my cancer diagnosis…although it feels like months because so much has happened and my brain is about to explode with all the new information it now contains!
Anyway, today was a busy one. First I had to meet with my GP and we talked about the support they can offer which includes them being available for calls and appointments if I have any questions, supporting my husband and putting together an anticipatory care plan for when I start chemotherapy incase I ever go into hospital out of hours. They were lovely and helpful and it was encouraging to see the NHS working as it should. She also signed me off work for 6 months as a starting point. Whilst this is great on one hand as it means I can focus on my health and recovery, it was also really challenging as work is a really important part of my life and I’m one of those crazy people who actually enjoy what they do for a living! Madness I know! She also noted my husband as my carer. This is a weird one to get my head round – I’m a (very!) strong willed, independent 30 year old woman so the notion of having a ‘carer’ is totally alien to me but luckily I married a superhero so if anyone can do it I know he can xxx
Following this my husband and I went to our local Maggie’s Centre to meet with the volunteers and talk about the resources and classes that they have on offer. This is an amazing service and entirely free!! I was soon signed up to ovarian cancer support groups and hair loss groups and given lots of clear information on my diagnosis and treatment. My husband was also given loads of support and information and this is so important – since my diagnosis I can honestly say that I think it’s harder on my husband, family and friends as they try to find their role in my journey and as I try to figure out where I will need the most support…this is something I guess I will get to know more clearly once I start my treatment and figure out what I can and can’t do for myself anymore. In the meantime it’s just chats and messages and knowing that they are there – which they are in abundance! Cue teary sentimental moment!
It was then time to go to my oncology appointment to meet the oncologist who would now be looking after me. She is lovely! We chatted about my diagnosis and she had a feel of my tummy and then she talked about the chemotherapy drugs I’ll be taking (more on that when I actually start). She explained that chemo will work by destroying the cancer cells in my body and stopping it growing new blood vessels. I will be given three different types of chemo through a drip every three weeks for a period of nine weeks. After this I will have another CT scan and then she will decide if I have surgery or another nine weeks of chemo and then surgery.
She also explained that there is a clinical drug trial taking place in which patients with my type of ovarian cancer (a genetic BRCA gene mutation that has lead to stage 3 or 4 cancer) are given an additional drug during their chemo and for two years after, that aims to stop cancer cells coming back. Obviously it isn’t yet licensed and so definitely a lot to think about before making my decision!
She gave me a lot of information and sent me away home to chat it over with family and sleep on it. I was then told that I would be admitted to the oncology ward tomorrow for a couple of days for some tests before starting my chemo next Wednesday.
I felt completely overwhelmed with information when I left her office and so headed home with my husband for a serious chat about our decision about the trial with my parents. I have to admit I was knackered though and so decided to leave it till tomorrow – it never ceases to amaze me how exhausting I find everything just now!
love and light, Fi xx