Since my post about feeling broken I’ve come on so far in my journey to recovery.
After breaking down over the needles on Saturday the medical team worked together to make things more comfortable for me. In fact their response and speed was second to none and what a difference they made! Within an hour they had made the decision that I didn’t need to receive fluids anymore as my blood tests showed that my levels were stable. They also switched all but one of my antibiotics to oral tablets. This meant that I instantly went from being attacked to an IV drip 24/7 to needing it only 3 hours twice daily. This meant that in the afternoons I was now able to be drip free! After so long this felt like a massive step in the right direction!
More importantly, this meant that I was now free to leave the hospital between lunch and dinner – if aided by my husband.
Instantly I went from a sobbing lost soul to my old self. That afternoon my husband brought my rescue dog to visit me and I’m not sure who was more pleased to see one another!
Pets really are an instant mood changer!
It was magical! I felt so free. I was me again, walking my dog with the man I love. I still had my syringe driver and drain attached, I was still weak, I was still in pain, but I was happy and really, when it comes down to it, what more can we really ask for from life?
The following day (Sunday) my husband took me to the local Botanic Gardens in a wheelchair.
Oh the buzz I got from being in nature again was just indescribable. The grass never greener. The flowers never more fragment. The sky never bluer. Slowly my soul was healing. Isn’t nature so powerful and wonderful.
Monday brought more positivity. I was visited by my consultant; a wonderful woman, who treats me rather than my diagnosis. She agreed that I would heal faster at home and that our focus needed to be to get me detached from all the machines/equipment. First step was to speak to the lab about the samples of sepsis taken from my body and what antibiotics would best treat it. Their response enabled me to be switched to just one antibiotic – rather than four! Best of all it was an oral antibiotic! I was disconnected from the drip completely and the painful venflon removed from my arm! Cue mini celebration!!!
Tuesday I was sent for an ultrasound scan to see if my drain could be removed. This would be dependent on all the sepsis having drained. I was so anxious. So desperate for good news, knowing that this would determine how much longer I needed to remain in hospital.
The scan, of course, was painless but they could see that a small (15ml) pocket of fluid remained. I was disheartened but I remained positive. I reminded myself that this was a tiny amount. I reminded myself how far I’d come. And I was right to, because the ward made the decision to remove the drain! They also made the decision to remove my syringe driver and try me back on oral pain relief and to stop my anti sickness medication. It was a lot of fast changes but it was positive. I was making progress. I was moving onwards in my journey and, more importantly, in the right direction.
My drain wasn’t removed until this morning but wow what a feeling! Suddenly I was free from attachments. I felt able to straighten my aching body again. Able to move more freely. I’d regained a sense of self. Today when I showered I wasn’t coordinating my usual juggling act of medical equipment. It was just me, standing under the healing water. Oh what bliss. The little things in life we take for granted really are all that matter in the bigger picture. They are wherein lies the joy.
As I write this I am dressed, no longer living in my pjs. I am free from equipment and my scars and bruises are fading. The cancer patient I faced in the mirror just days ago is fading. My sense of self is returning. This was only possible because of an exceptional medical team treating the person and understanding that health care goes beyond pharmaceutical drugs. This is person centred care. I am so grateful.
I’m not going home yet. But soon. The light at the end of the tunnel is shining bright. I’ve made it through another phase in my journey. It was tough. Tougher than tough. I saw darkness, I felt pain, I faced fear, but it didn’t break me. I feel stronger for knowing the experiences I faced. Better for the people I’ve met. Inspired and encouraged by the human spirit and the love and care in the world.
I write this because I know many other beautiful souls will go to the dark places I went to in their own journeys. Please remember that where there is darkness there comes light. There is a way through. Never give up, least of all on yourself. You have the power to do this. You are enough.
Love and light, a very happy Fi xxx